Who is eligible for clinical trial NCT02683512?

Participants must meet protocol criteria for Glycogen Storage Disease Type IV. Confirm exact inclusion and exclusion requirements with the study coordinator.

Does clinical trial NCT02683512 provide travel or cost reimbursement?

Check with the site coordinator at the participating facility for travel and lodging stipend availability, and for which routine-care costs are covered.

🏛️ Verified NIH Record • Updated 2026-05-04

GBE Deficiency (GSD IV and APBD) Natural History Study (NCT02683512)

🟢 Recruiting Interventional Protocol 📊 Observational Clinical Research Sponsor: Duke University

🩺 Plain-English Summary (8th-Grade Level)

Collection and review of clinical information related to glycogen branching enzyme (GBE) deficiency, diagnosed as Glycogen Storage Disease Type IV (GSD IV) or Adult Polyglucosan Body Disease (APBD generated during clinic visits.

Who can join: Review the eligibility criteria below.

Location: Duke University Medical Center — Durham, North Carolina

📋 "Do I Qualify?" — 1-Minute Self Screener

Instant Checklist

Full eligibility criteria are available on the official NIH protocol. View the criteria ↗

📍 All Participating Trial Locations (1 Sites)

Duke University Medical Center — Durham, North Carolina

💰 Cost, Insurance & Patient Rights

100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
Routine Patient Care: Under federal law (ACA § 2709) and many state statutes, routine care costs are covered during participation.
Voluntary Participation: You may withdraw at any time without affecting your standard medical care.

🏛️ View Official NIH Record ↗